In July of 2012, I attended a strategic planning meeting for Autism Speaks in San Francisco. If Autism Speaks spent as much money on “family services” as they do on research, they could make a big impact in the lives of many autistic people and their families, but based on their budget it seems autistic people in the present isn’t a concern of theirs. To do this, we work with Congress, the White House, state legislators, agencies, and regulators. Autism Speaks is closely monitoring developments around COVID-19 (coronavirus), with the health and safety of our constituents in mind. Family can be much stronger than autism ever anticipated, and we will not be intimidated by you, nor will the love and strength of my community. We are Qatar. Significantly, there was not a single autistic person scheduled for attendance. It’s one reason we autistics need more influence over the research agenda. In it, I outlined multiple reasons why Autism Speaks is a harmful organization to autistic people, and why they should not be supported. The sole purpose of this research would be to develop a prenatal test for autism so that autistic fetuses can be selectively aborted. Their founder was a media executive; their name a marketer’s creation. And guess what? That informal diagnosis has been confirmed by the Autism Diagnostic Observation Scale [2] and other processes at autism clinics. I am autism. Autism Speaks Inc. ist ein Unternehmen mit Sitz in New York City.Die Non-Profit-Organisation, die 2005 von Suzanne und Bob Wright gegründet wurde. Tap here to turn on desktop notifications to get the news sent straight to you. As I began talking to autism researchers I realized I did not have to be a scientist to have a valuable perspective on autism research. In December of 2007, University of Washington child psychologist Geraldine Dawson was named Chief Science Officer of Autism Speaks. When you came for my child, you forgot: you came for me. Had I been able, I would have made different choices. You think because some of our children cannot speak, we cannot hear them? All rights reserved. ", The video depicts images of children with autism, paired with a menacing voiceover that intones: "I am Autism...I work faster than pediatric AIDS, cancer and diabetes have no cure for me...I will plot to rob you of your children and dreams. Change ), You are commenting using your Facebook account. INSAR has encouraged making autistic people research collaborators. We have had challenges, but we are the best when overcoming them. They describe autistic people as burdens, and autistic lives as tragedies. In addition to being an autistic person, I was a parent of an autistic son, and I thought I understood how they felt, even if I did think some of their ideas were unhealthy and counterproductive. A parent can certainly speak for autism parents, but that is a different community and like all parents, their wants and needs are sometimes at odds with those of their children, particularly as the children grow up. It’s offensive and it is damaging to us. She’s certainly not being malicious, probably just ignorant. I have done some revision to reflect current facts, and have added some to it. In this chapter he reflects on his decision to resign from advising Autism Speaks and the aftermath. The images or other third party material in this chapter are included in the chapter's Creative Commons license, unless indicated otherwise in a credit line to the material. Even without college credentials (which were out of reach for me and many of them) I’d been successful (at building a business repairing and restoring cars), and if I could find a wife, get a job, or establish a business, they could too. I don’t sleep, so I make sure you don’t either. Sorry, your blog cannot share posts by email. According to Autism Speaks’ own spending reports, in the last three years less than 4% of their budget goes towards “family services,” which is just about the only thing Autism Speaks does that can be remotely defended as charitable. Anxiety and depression are constant companions for most of us. Part of Springer Nature. At IACC meetings I routinely see differences of opinion between non-autistic parents and actual autistics. Why You Should Not Support Autism Speaks — Speaking of Autism… | Another Spectrum, Sesame Street partners with Autism Speaks – A step backwards for autism acceptance. Autism Speaks has also been quite sympathetic to the anti-vaccine movement at certain points. The main Autism Speaks board meeting came and went, and nothing happened.